Nystagmus Network
The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Who to contact
- Contact Name
- Sue Ricketts
- Contact Position
- Executive Information and development manager
- Telephone
- 01427 718093 01427 718093
- info@nystagmusnet.org
- Website
- www.nystagmusnet.org
- Scan to visit this website
- Notes
Contact
Website: www.nystagmusnetwork.org
Email: info@nystagmusnet.org
Tel: 01427 718093
Address: 70 Hyde Vale London SE10 8HP
Social media
Linkedin: Linkedin.com/nystagmusnetwork
Twitter: Twitter.com/NystagmusUK
Facebook: Facebook.com/NystagmusNetwork
Instagram: Instagram/NystagmusNetwork
Nystagmus Awareness Day - 20 June
Thanks
contact
Where to go
- Address
-
70 Hyde Vale,
London
London,
- Postcode
-
SE10 8HP
View SE10 8HP on a map - Notes
This is our office and postal address. our services are predominantly on line and telephone based
Costs
- NIL
- Details
- Free service, membership is available at a very low cost however, you do not have to join to benefit from our free advice and support
Availability
- Referral required
- No
- Referral Details
Simply contact us by email or telephone
Local Offer
- Description
We support people of all ages however, are available for parents and carers of children and young people.
- Contact Name
- Nystagmus Network
- Contact Telephone
- 01427 718093
- Contact Email
- info@nystagmusnet.org
- Local Offer Age Bands
-
0-5 years
5-11 years
11-16 years
16-19 years
19-25 years
Parents & carers
Last Updated
Last updated: