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Nystagmus Network

Description

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life. 

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

 

 

Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and development manager
Telephone
01427 718093
E-mail
info@nystagmusnet.org
Website
www.nystagmusnet.org
Notes

 

Contact

Website: www.nystagmusnetwork.org 

Email: info@nystagmusnet.org 

Tel: 01427 718093

Address: 70 Hyde Vale London SE10 8HP

Social media

Linkedin: Linkedin.com/nystagmusnetwork 

Twitter: Twitter.com/NystagmusUK 

Facebook: Facebook.com/NystagmusNetwork 

Instagram: Instagram/NystagmusNetwork

Nystagmus Awareness Day - 20 June

Thanks

 

contact

Where to go

Address
70 Hyde Vale,
London
London,
Postcode
SE10 8HP
Notes

This is our office and postal address. our services are predominantly on line and telephone based

Other Details

Costs

Table of costs
Table of costs
AmountCost Type
NIL
Details
Free service, membership is available at a very low cost however, you do not have to join to benefit from our free advice and support

Availability

Referral required
No
Referral Details

Simply contact us by email or telephone