Below are links to the websites of organisations specialising in supporting people with a genetic disorder.
Genetic Disorders UK is a national charity working to improve the lives of individuals and families living with a genetic disorder by providing resources and support ...
- directly to those affected
- to the charities and patient groups dedicated to a single genetic disorder or related group of genetic disorders.
Unique is a small charity supporting, informing and networking with families living with
- a Rare Chromosome Disorder.
- or some Autosomal Dominant Single Gene Disorders
associated with learning difficulties and developmental delay, among other symptoms.
- Local Offer Age Bands
Parents & carers
- Needs Level
- SEN Provision Type